EDS-IF Seminars | Talks | Webinars

EDS-IF TALK SERIES: May - December 2026

👥💬TOPIC: EDS / HSD & The Matters of Heart - Cardiac Management, Lifelong Precautions, and Advanced Medical Care... Beyond the Basics.
Date: Friday, 28th August 2026

SPEAKER: Dr. VIKAS KOHLI, Interventional Cardiologist
ACADEMICS:  

• MBBS (UCMS – New Delhi)

• MD (Paediatrics - Postgraduate Institute of Medical Education and Research),

• Residency - Paediatrics (Albert Einstein College of Medicine, USA),

• Fellowship, Paediatric Cardiology (University of Miami, Florida - USA)

• Fellow American College of Cardiology 

ANCHOR: Ms Ishika Kaur, MA (History of Arts)

The Friday, 28th August 2026 TALK Session on EDS / HDS & The Matters of Heart - Cardiac Management, Lifelong Precautions, and Advanced Medical Care... Beyond the Basics by Dr VIKAS KOHLI, INTERVENTIONAL CARDIOLOGIST was really phenomenal. 

EDS-IF found this talk session about Ehlers-Danlos Syndrome (EDS) / Hypermobility Spectrum Disorder (HSD) much helpful, many questions were responded by Dr VIKAS KOHLI but the key impactful takeaways from his talk session were on following questionnaires  --

1. Do I need routine follow-up echocardiograms, and how often? 

2. What are cardiac management techniques for Ehlers Danlos Syndrome remarkable persons? 

3. What are medical protocols to stop blood pooling? 

4. I have BRAIN FOG mainly during the day. I do have POTS but not MCAS of rashes / mashes and no CCI and my sleep is also normal. I do have normal hydration, salt intake and do take medicines like - Ivabradine, Midodrine, Propanolol & Famotidine but still I don't see any improvement in my BRAIN FOG. What could be the better solution in managing my BRAIN FOG during the day period? 

5. Any idea about the mechanics of POTS and it's clinical management? 

6. Are my dizziness, fast heart rate, or palpitations be linked to POTS (Postural Orthostatic Tachycardia Syndrome)? 

7. POTS and Ehlers-Danlos Syndrome: Why They Travel Together, and What That Means?

8. Why hEDS people have worst POTS symptoms than any other EDS SUB-TYPES. POTS are very much there with this EDS SUB-TYPES like hEDS. vEDS, cEDS & clEDS but hEDS people have worst POTS symptoms, followed by vEDS, than cEDS & minimal for clEDS. Why hEDS and POTS Intersect Strongly? 

9. The EDS / HSD remarkable population normally has POTS like - Neuropathic POTS, Hyperadrenergic / Adernal POTS, Hypovolemic POTS, Secondary POTS, Deconditioning POTS and Mixed Type POTS. Can overlapping of POTS sub types also exist within EDS / HSD remarkable issues people? 

10. What are the extreme conditions of POTS with Ehlers Danlos Syndrome people? 

11. Why Ehlers danlos Syndrome people have BRAIN FOG, Dizziness and Fatiqueness? What are the recommended medications and exercises? 

12. How is maintenance of blood pressure in the normal or low normal range and prevention of surges in blood pressure important for vEDS remarkable issues people? 

13. What are the precautions measure should be adopted for vascular type Ehlers Danlos Syndrome (vEDS) remarkable issues people? 

14. What are the medications widely used to manage the condition and lower the risk of life-threatening blood vessel tears among vEDS people? The primary strategy is using blood pressure medications to reduce physical strain on fragile arterial walls. 

15. Cardiac management for vascular Ehlers-Danlos Syndrome (vEDS) is highly specialized and focuses entirely on protecting extremely fragile arterial walls. Because vEDS—caused by mutations in the COL3A1 gene—carries a high risk of spontaneous arterial dissection, aneurysm, and rupture, management emphasizes strict medical optimization and extensive whole-body imaging rather than routine surgical intervention What could be the best possible ways for Cardiac management for vascular Ehlers-Danlos Syndrome (vEDS)? 

👥💬TOPIC: EDS/HSD - Physiatry & Functional Rehabilitation
Date: Friday, 24th July 2026

SPEAKER: Dr. Sonu Singh & Dr Himanshu Ahuja, Physical Medicine & Rehabilitation (PMR)
ACADEMICS: MBBS, MD (Physical Medicine & Rehabilitation)   

ANCHOR: Dr MANSI VISHAL, Phd (Human Genetics)

EDS-IF TALK SERIES, 12th June 2026: EHLERS-DANLOS SYNDROME (EDS) - PAIN MANAGEMENT

SPEAKER: Dr ROSHAN ADAPPA, Pain Management Specialist 

ACADEMICS: MBBS, MD (Anaesthesiology), FIASP, MMed - Pain Management (UK), European Diploma in Pain Medicine (EDPM, Belgium).  

Experiences: He has more than over 15 years of experiences as PAIN MANAGEMENT. Expertise in Interventional Pain Management, including  cervical, shoulder, Hips, Knees, Low Back Pain and other Chronic Pain conditions using non-surgical and minimally invasive techniques.  He mainly specializes in creating specific pain management program’s for individuals with chronic pain to  help them regain their mobility and improve their quality of life.  

He has received prestigious Dr Andrew Foster medal from EdgeHill University, UK. This medal is given to the best performing MMed/MCh candidate across all medical and surgical programs.

ANCHOR: Ms LISHA S MENON, MBA

👥💬TALK Session - EDS-IF session with Dr Lara Bloom, President & CEO - Ehlers Danlos Society
Anchor: Srijani Bera, Clinical Physiologist & Coordinator - Ehlers Danlos Society India Foundation (EDS-IF)

Date: Tuesday, 7th April 2026